The Kansas Cancer Registry (KCR) is the only
population-based cancer incidence database in Kansas. KCR has been in
existence since 1968. Frederick Holmes, M.D., was asked in 1968 by the
Kansas State Department of Health and the University of Kansas Medical
Center to create a registry of cancer patients in the State of Kansas.
With the assistance of the Kansas Division of the American Cancer Society
and the federal government, the registry was developed over the next five
years. Since 1982, cancers have been reportable diseases in Kansas
according to Kansas Statute 65-102. This Regulation requires all cancers
to be reported to the Kansas Cancer Registry by all hospital
In 1994, Sue-Min Lai,
Ph.D., MS, MBA, became Director of the Kansas Cancer Registry and federal
funding from the Centers for Disease Control and Prevention (CDC) was
secured to enhance the Kansas Cancer Registry. Under Dr. Lai’s direction,
the Kansas Cancer Registry has successfully competed federal funding via
grant mechanisms to maintain the registry operation. Accomplishments are
briefly described below.
Kansas Law requiring
cancer reporting (K.S.A. 65-1, 168 to 174) and associated regulations (K.A.R.
28-70-1 to 28-70-3) have been enacted and implemented since 1997. These
rules and regulations have detailed information on when, how, and what
information each type of health care provider should report to KCR.
The Kansas Cancer
Registry (KCR) is certified on an annual basis by the NAACCR and has been
awarded by the NAACCR with gold standards of achievement in completeness,
timeliness, and data quality of cancer reporting. KCR has registered at
least 90% of the expected number of Kansans with cancers within 12 months
of the close of the diagnosis year and over 95% completeness of reporting
within 24 months of the close of the diagnosis year.
The Kansas Cancer
Registry which is the only population-based source of information on
cancer incidence in Kansas, has published annual reports about cancer
incidence (new cancer cases) and mortality for Kansans who have been
diagnosed with cancers since 1995.
Registry data have been
used for cancer cluster investigations, setting Healthy Kansans 2000 and
2010 priorities, hospital strategic planning, clinical research, policy
making, and inclusion in the United Statistics Cancer Statistics – 1999
Incidence, published in 2002.
KCR operation is
governed by Kansas state laws and reviewed and certified annually by the
Institutional Review Board of the Kansas Department of Health and
Environment as well as the University of Kansas Medical Center. Registry
data that may identify individuals are not released in reports or any