What is the Kansas Cancer Registry?
The Kansas Cancer Registry (KCR) is the only population-based source of information on cancer incidence in the State of Kansas. KCR has collected over 500,000 cancer records. Population-based cancer registries cover all fifty states and the District of Columbia.

 

What is the purpose of the registry?
KCR provides information on the occurrence of cancer, stage at diagnosis, survival and sub-populations affected by different types of cancer. Registry information can be used for research as well as strategic planning for and evaluation of cancer prevention and control efforts.

 

How is the information collected?
KCR is designated by the Kansas Department of Health and Environment (KDHE) to collect case reports for all Kansans diagnosed with cancer. Per Kansas Statute 65-1, Sections 168-174 and Kansas Administrative Regulation 28-70-1 through 28-70-3, cancer is a reportable disease in Kansas. The reporting person or institution shall have immunity from any liability, civil or criminal. Kansas residents who are diagnosed or treated with cancer in other states such as Missouri, Nebraska, Colorado, Oklahoma, Texas and Washington state are also registered in the KCR database through data exchange.

 

What type of information is collected?

KCR collects information on:

  • Demographics: (e.g., patient’s name, sex, age, race, residence, place of birth, occupation)

  • Clinical information(e.g., date of diagnosis, type of cancer, stage at diagnosis, treatment)

  • Vital status (e.g., date of death, cause of death)

 

What is the quality of the registry data?
The information contained in the registry is accurate and complete. Currently, KCR identifies approximately 95% of expected cases within 24 months of the close of the diagnosis year, although this may vary across geographic areas within the state. Various quality improvement programs have been implemented to enhance the completeness and timeliness of case reporting and data quality. Education and training programs for hospitals are provided on a regular basis to ensure quality of data collection.

 

Who is able to use the information collected?

Cancer statistics generated from registry data may be used by:

  • General public

  • Researchers

  • Physicians

  • Hospitals

  • Health care planning agencies

 

Who sponsors the Kansas Cancer Registry?
The Kansas Cancer Registry receives financial support from the Centers for Disease Control and Prevention and the Kansas Department of Health and Environment. In-kind support is also provided by the University of Kansas Medical Center.

     

Is the information collected confidential?
Personal identifiers are protected by K.S.A. 65-102b and may not be disclosed except as provided in the Statute.

 

Future plans

KCR will continue to update cancer statistics on leading cancers in Kansas annually and produce statistics on selected cancers associated with modifiable risk factors (e.g., obesity, smoking) every two years. KCR will continue to compete and secure federal grants as well as Kansas State Funds for registry operation. Accomplishments in data collection, data quality, and data use are already apparent. To further improve timeliness of reporting and operational efficiency, KCR has been collaborating with various agencies and ambulatory care facilities on the implementation of electronic case reporting.

 

OVERVIEW

The Kansas Cancer Registry (KCR) has served as the only statewide population-based cancer registry in Kansas since 1995. KCR operates under the Cancer Registries Amendment Act, Public Law 102-515 and Kansas Statute 65-1, Sections 168-174. The Kansas Statute requires all cancers to be reported to KCR by all Kansas licensed health care institutions/providers and physicians.

Since 1994, Sue-Min Lai, Ph.D., MS, MBA has successfully secured federal funding for KCR operations from the Centers for Disease Control and Prevention (CDC) National Program of Cancer Registries (NPCR). Under Dr. Lai’s direction, the Kansas Cancer Registry has achieved a series of milestones and accomplishments. Highlights include:

  • Kansas Law requiring cancer reporting (K.S.A. 65-1, Sections 168-174) and associated regulations (K.A.R. 28-70-1 to 28-70-3) have been enacted and implemented since 1997. These rules and regulations have detailed information on when, how, and what information each type of health care provider should report to KCR.

  • KCR data have been evaluated and certified annually by NPCR and the North American Association of Central Cancer Registries (NAACCR).

  • Cancer statistics for Kansas have been made available to national public health agencies and are available in reports and a query system on the KCR website.

  • Registry data have been used for research, community needs assessment, and comprehensive cancer prevention and control efforts at the national, state, and local levels.