Transforming Health
and Healthcare with Information Technology
PRIVACY
AND YOUR HEALTH INFORMATION:
TIPS TO PROTECT YOUR PRIVACY
The Privacy of Your Health Information Is Protected
By Federal Law Most of us believe that our medical and other health information
is private and should be protected, and we want to know who has or can
see this information. The Health Insurance Portability and Accountability
Act of 1996 (HIPAA) Privacy Rule, a federal law, gives you rights to your
health information and sets rules and limits on who can look at and receive
your health information.
Who Must Follow This Law?
We call the providers, businesses, and organizations that must follow
the HIPAA Privacy Rule covered entities.
Covered entities include:
• Health plans, including health insurance companies, HMOs, company
health plans, and certain government programs that pay for health care,
such as Medicare and Medicaid.
• Most health care providers—those that conduct certain business
electronically, such as electronically billing your health insurance—including
most doctors, clinics, hospitals, psychologists, chiropractors, nursing
homes, pharmacies, and dentists.
• Health care clearinghouses—entities that process nonstandard
health information they receive from another entity into a standard (i.e.,
standard electronic format or data content), or vice versa.
Covered entities routinely establish relationships, typically through
contracts, with other businesses to help them with particular programs
or services. These businesses are commonly referred to as a covered entity’s
business associate.
• Business associates—those businesses or organizations doing
business with a covered entity must also follow the HIPAA Privacy Rule.
What Information Is Protected?
• Information your doctors, nurses, and other health care providers
put in your medical record.
• Conversations your doctor has about your care or treatment with
nurses and others.
• Information about you in your health insurer’s computer
system.
• Billing information about you at your clinic.
• Most other health information about you held by those who must
follow this law.
How Is This Information Protected?
• Covered entities must have appropriate physical, technical, and
administrative safeguards in place to protect your information.
• Covered entities must reasonably limit uses and disclosures to
the minimum necessary to accomplish their intended purpose.
• Covered entities must have procedures in place to limit who can
view and access your health information as well as implement training
programs for employees about how to protect your health information.
What Rights Does This Law Give Me Over My Health Information?
Health insurers and providers who are covered entities must comply with
your right to:
• Ask to see and/or get a copy of your health records (you may be
charged a reasonable fee for the copying of your record).
• Have corrections added to your health information.
• Receive a notice that tells you how your health information may
be used and shared.
• Decide if you want to give your permission before your health
information can be used or shared for certain purposes, such as for marketing.
• Get a report on when and why your health information was shared
for certain purposes.
What Should I Do If My Rights Are Denied or I Don’t Believe My Health
Information Is Being Protected Properly?
• Contact a privacy
officer.
Every health care provider and health plan covered by the federal health
privacy law must appoint someone on their staff as a privacy officer.
If you experience a problem related to the privacy of your medical records
or access to them, you might want to contact this individual in an effort
to resolve the problem.• File a federal complaint.
You may also choose to file a complaint with the U.S. Department of Health
and Human Services Office for Civil Rights, the federal agency charged
with enforcing the federal health privacy law. This office has the authority
to impose civil and criminal penalties if they find a violation of the
law. Your complaint must be filed within 180 days of the incident. You
can also go directly to http://www.hhs.gov/ocr/privacy/index.html•
Seek state-level recourse.
There are officials in your state who may be willing to help you address
violations of the federal privacy law and additional state privacy laws.
Among those likely to help are your state attorney general http://www.naag.org/,
your state insurance commissioner http://www.naic.org/, and a state medical
board http://www.fsmb.org/. See the websites to find your state’s
officials.• Explore lawsuits.
You do NOT have the right to sue a health care provider or health plan
for a violation of the federal privacy law, but a documented violation
of the federal law may strengthen a privacy case you bring in state court.
Who Can Look at and Receive Your Health Information?
The law sets rules and limits on who can look at and receive your health
information.
To make sure that your health information is protected in a way that does
not interfere with your health care, your information can be used and
shared:
• for your treatment and care coordination;
• to pay doctors and hospitals for your health care and to help
run their businesses;
• with your family, relatives, friends, or others you identify who
are involved with your health care or your health care bills, unless you
object;
• to make sure doctors give good care and nursing homes are clean
and safe;
• to protect the public's health, such as reporting when the flu
is in your area; and
• to make required reports to the police, such as reporting gunshot
wounds.
Your health information cannot be used or shared without your written
permission unless this law allows it. For example, without your authorization,
your doctor or another covered entity generally cannot:
• give your information to your employer,
• use or share your information for marketing or advertising purposes,
• share private notes about your health care; and/or
• share your information with your health plan if you pay for the
medical care in full and request that the information not be shared.
Employers and Health Information in the
Workplace
The HIPAA Privacy Rule controls how a health plan or covered health care
provider discloses protected health information to an employer, including
your manager or supervisor.
Employment Records
The HIPAA Privacy Rule does not protect your employment records, even
if the information in those records is health-related. Generally, the
HIPAA Privacy Rule also does not apply to the actions of an employer,
including the actions of a manager in your workplace.
If you work for a health plan or covered health care provider:
• The HIPAA Privacy Rule does not apply to your employment records.
• The HIPAA Privacy Rule does protect your medical or health plan
records if you are a patient of the provider or a member of the health
plan.
Requests From Your Employer
The HIPAA Privacy Rule does not prevent your supervisor, human resources
worker, or others from asking you for a doctor’s note or other information
about your health if your employer needs the information to administer
sick leave, workers’ compensation, wellness programs, or health
insurance.
• However, if your employer asks your health care provider directly
for information about you, your provider cannot disclose the information
in response without your authorization.
• Covered health care providers must have your authorization to
disclose this information to your employer, unless other laws require
them to disclose it.
Generally, the HIPAA Privacy Rule applies to disclosures made by your
health care provider, not to the questions of your employer.
What Can I Do to Protect My Health Information?
• You should get to know the important rights listed above.
• You should ask your provider or health insurer questions about
your rights.
• You should NEVER give health information to someone if you are
not certain the person is authorized to have your information.
• You should not enter information online unless it is a secure
website that you trust.
• You should not send e-mails that contain health information from
a work e-mail address.
• You should not use a work computer to enter health information
online.
• You should NEVER give health information to spammers (unsolicited
e-mails).
• You should be conscious of your home computer security.Remember
that YOU decide what information about yourself to reveal and when, why,
and to whom.